Comments on: Cluster Headaches: My POV on Excruciating Pain!

By: bgood182

bgood182 — Sun, 28 Feb 2010 17:08:08 +0000

i have been getting these since i was 16. i am female so they told me i had migraines. still to this day…24 yrs later i dont know what a migraine even feels like!!! it took yrs for me to figure out what they were…an article from someone overseas!!..i had to bring that to the docs and tell them stop putting me thru tests and trials and tons of different meds that did nothing but give me bad side effects. u r lucky. litium stopped mine for 2 yrs but now they r back, everyday + nite.good luck

By: Sharkjumpin

Sharkjumpin — Sat, 27 Feb 2010 04:54:55 +0000

I am with you, this is my 3rd year diagnosed with the cluster, 5th year having them.

Hardest part isn’t the damn pain- it’s the fatigue. My work slides downhill, short tempered all the time and always dreading having a random cluster event in public when the peak of the cycle approaches.

By: kmahiri

kmahiri — Fri, 26 Feb 2010 17:17:34 +0000

not an expert of any kind

But in study and in theory, common analgesics like Paracetemol or acetominophen are actually not helpful.

By: u113902

u113902 — Fri, 26 Feb 2010 03:33:01 +0000

Been suffering for many years! I have tried everything and the best remedy thus far is Imitrex! It takes EXACTLY 30 minutes for it to work . 30 minutes of pain is better than 2 hours which is what I used to deal with. Good luck…

By: danagasta1

danagasta1 — Tue, 23 Feb 2010 05:37:01 +0000

I haven’t had a bad one since I started using a heating pad when I first feel the signs. The heat must override the nerve impulses that cause them. Strange but true.

By: qweilo216

qweilo216 — Fri, 19 Feb 2010 18:33:48 +0000

Hey Fellow Cluster Heads,
In NYC. Cluster Head for four years now. Bad sufferer. Just out of the hospital for the fifth time now. I don’t know how my partner lives with it sometimes and how he gets me to the hospital each time when they heat up that badly. Mine wound up after working at the Trade Center as a firefighter, there are alot of us suffering from headaches now after working there

Dan in New York

By: miraclbab

miraclbab — Tue, 16 Feb 2010 17:40:32 +0000

yarrrrrrrrrrr!! my head hurts to bad to comment correctly

By: jjuk69

jjuk69 — Tue, 16 Feb 2010 09:13:28 +0000

u113902. The absolute best medicine is a subcutaneous injection called Imigran subject. It takes no longer than 10 minutes to work. In the UK, it’s also the ONLY licenced drug for cluster headaches. The drawbacks are that it’s quite expensive and you can only take 2 per 24 hours. It’s a vaso deconstrictor which means it widens the veins and could be dangerous for people with heart conditions, etc.

By: jjuk69

jjuk69 — Sat, 13 Feb 2010 13:52:24 +0000

This is in my experience of course. It’s also worth noting that high flow oxygen with a non rebreather mask works within 15-30 minutes and is obviously much cheaper and easier to get a hold of than the Imigran injections.

By: AlbinoGangstaz

AlbinoGangstaz — Thu, 11 Feb 2010 22:27:55 +0000

Are they intense for you?