Cluster Headaches: My POV on Excruciating Pain!
Thursday, January 14th, 2010 at
12:23 am
AtLastTheCatsBack asked:
article. PS Thanks to all the YouTube-Clusterhead community! You get it…you REALLY get it! It is great to know I’m not alone: no longer do I need to have these monstrous headaches diminished by well-meaning (?) people who do not know what they are talking about. I honestly believe that experiencing the monumental pain of a Cluster headache has made me a stronger person: Anyone who can withstand this level of pain can endure anything. … “Cluster Headache” “Sucide Headache” Migraine Pain Tumor …
Tagged with: Headache Migraine • Migraine Pain • Pov
Filed under: Headaches
Like this post? Subscribe to my RSS feed and get loads more!
My Dr’s. Name was Marybrake. I’ll never forget her name.
Wow, you nailed it. My question is, why isn’t there more public knowledge about this miserable condition? I’m going through a spell and I’m afraid to go to bed tonight. This is hell.
Great video. I suffer for about 20 years, and this week I discovered that what I have is Cluster Headaches.
I was so happy to KNOW what I have, and to know it’s not deadly or something.
the name of the doctor that made the correct diagnostic after a lot of them failed? DR. GOOGLE. Thank you forever Dr. Google!!!
Thank you for making this video, it really spells out in simple, easy to understand terms exactly what a cluster headache is, and how they work. My thoughts are with you.
I’m episodic with two a day. 1:30 am and 6:30 am. Oddly, it seems during the winter months that I get the longer bouts (1-3 hours), while getting shorter ones during hot weather.
I go through 4 weeks of CH’s followed by 4 weeks of remission. The pattern seems really odd to me, but I just have to live with it.
That is not an option!…..I had chronic CH for 31 years and it went away 3 years ago.
Try energy drinks like monster at onset or get some oxygen from a welding supply house, 15 LPM with a non rebreather mask.
NEVER GIVE UP!
i like the 2:06 comment. it does always happen at the same times of years even onthe same dates and times of day
I used to get them horrilbe the night be for my brother would come home from boardign school…..every single year.
I’ve been in my room for a week now getting my ch can’t find a doc to give me some kind of shot or something I feel like killing my self but I have kids can’t do it sucks
some friendly aquantance! kill em!
Thanks for the video. I’m a 24f, and I get a mixture of migraines and cluster headaches. They both feel the same, but ch’s are shorter and come on more quickly, while migraines last for days and come on gradually. It’s hard to see the world the same way after a ch or migraine. I always found imitrex is an effective abortive and propranolol is an effective prophylactic.
i agree with MAK…
Hi, just into my second attack. First one was seven moths ago. I was lucky enough that my doc knew what it was right away. I ve tried all the common reliefs like O2 and imigran but what realy works for me is prednison.
I take 60 Mg and reduce by 5 Mg every day.
I am not saying this will work for everyone and it won t work for the chronics amongst us but after consulting your doctor you might wanna give it a try.
Anyway i liked the video
yep they hurt like a *******..and adjective does not come to me to explain how it hurts..O2 and vicodin has worked well for for me. I would NOT wish this on my worst enemy. I have had them for 22 years at a frequency of one to 2 a year lasting for 20 min to 4 hrs.I know when you come out the other end of the Clusters if your like me youu’re emotionally and Physically “wiped-out”
I hope you find peace
Dont know if it rare but mine started @ 8 yrs old and Im 35 now and unless im on topamax I get em every year hard between may-sept every year.
I believe they are hereditary. My grandmother had severe headaches since she was 8 yrs old. I was diagnosed with CH at 17 yrs old. It’s the most intense pain I have ever felt. I do not wish them on anyone. This cluster started 6/23/09 and is still going. 2 times a night and now 1 during the day! I feel like I can’t get relief. Thank God for Imitrex injections and Oxygen! Hopefully it will end soon. This is the first one in 2 yrs.
My father suffers from CH. I have two questions. Are they hereditary “run in the family”. And is it very rare for a 14 year old to get a CH.
Thanks
Are they intense for you?
This is in my experience of course. It’s also worth noting that high flow oxygen with a non rebreather mask works within 15-30 minutes and is obviously much cheaper and easier to get a hold of than the Imigran injections.
u113902. The absolute best medicine is a subcutaneous injection called Imigran subject. It takes no longer than 10 minutes to work. In the UK, it’s also the ONLY licenced drug for cluster headaches. The drawbacks are that it’s quite expensive and you can only take 2 per 24 hours. It’s a vaso deconstrictor which means it widens the veins and could be dangerous for people with heart conditions, etc.
yarrrrrrrrrrr!! my head hurts to bad to comment correctly
Hey Fellow Cluster Heads,
In NYC. Cluster Head for four years now. Bad sufferer. Just out of the hospital for the fifth time now. I don’t know how my partner lives with it sometimes and how he gets me to the hospital each time when they heat up that badly. Mine wound up after working at the Trade Center as a firefighter, there are alot of us suffering from headaches now after working there
Dan in New York
I haven’t had a bad one since I started using a heating pad when I first feel the signs. The heat must override the nerve impulses that cause them. Strange but true.
Been suffering for many years! I have tried everything and the best remedy thus far is Imitrex! It takes EXACTLY 30 minutes for it to work . 30 minutes of pain is better than 2 hours which is what I used to deal with. Good luck…
not an expert of any kind
But in study and in theory, common analgesics like Paracetemol or acetominophen are actually not helpful.
I am with you, this is my 3rd year diagnosed with the cluster, 5th year having them.
Hardest part isn’t the damn pain- it’s the fatigue. My work slides downhill, short tempered all the time and always dreading having a random cluster event in public when the peak of the cycle approaches.
i have been getting these since i was 16. i am female so they told me i had migraines. still to this day…24 yrs later i dont know what a migraine even feels like!!! it took yrs for me to figure out what they were…an article from someone overseas!!..i had to bring that to the docs and tell them stop putting me thru tests and trials and tons of different meds that did nothing but give me bad side effects. u r lucky. litium stopped mine for 2 yrs but now they r back, everyday + nite.good luck